Patient Advice & Charity Websites

Your Data Matters to the NHS

Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.

How your data is used

Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital.  It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.

Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.

You have a choice

You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.

Will choosing this opt-out affect your care and treatment?

No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.

What do you need to do?

If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.

To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters

Download a copy of the patient leaflet


Charity Websites

Cancerhelp
cancer help
Free information service provided by Cancer Research UK about cancer and cancer care for people with cancer and their families. Information is formatted in such a way that makes understanding the website an easy process

Macmillan Cancer Support cancer backup
Europe's leading cancer information charity, with over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers.

Diabetes UK
Diabetes UK Largest charity in the UK devoted to the care and treatment of people with diabetes in order to improve the quality of life for people with the condition

Asthma UK Asthma UK
This website has been revamped to meet the needs of the thousands of people with asthma who visit the site each day, either to find important information about asthma and how to control it


Alzheimer’s Society Alzheimer’s Society
Comprehensive information for people with all forms of dementia. Alzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.

Guide Dogs For The Blind Guide Dogs for the Blind  
Guide Dogs wants a world in which all blind and partially-sighted people enjoy the same rights, opportunities and responsibilities as everyone else. Their mission is to provide guide dogs and other mobility services that increase the independence and dignity of blind and partially-sighted people. We campaign for improved rehabilitation services and unhindered access for all blind and partially-sighted people.

Mental Health Foundation Mental Health Foundation
Founded in 1949, the Mental Health Foundation is a leading UK charity that provides information, carries out research, campaigns and works to improve services for anyone affected by mental health problems, whatever their age and wherever they live

Sense Sense  
Sense is the leading national charity that supports and campaigns for children and adults who are deafblind. We provide expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them. We also support people who have sensory impairments with additional disabilities

Epilepsy Action Epilepsy Action
Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 456,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.

British Heart Foundation British Heart Foundation
Our vision is of a world in which people do not die prematurely of heart disease. We will achieve this through our pioneering research, our vital prevention activity and by ensuring quality care and support for people living with heart disease.

We need you to share our vision because, together, we really can beat heart disease.

Relate
Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through this website.

MS Society MS Society
Around 100,000 people in the UK have MS. It affects two million more. We offer hope for the future by investing millions in research, and help for today through our information, support and campaigning.

The National Autistic Society

The leading UK charity for people on the autism spectrum (including Asperger syndrome) and their families, providing information and support.

cancer help



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